Dr Lisa Marie Emerson, a senior lecturer in Child and Family Psychology, says the study鈥檚 findings highlighted that there is not enough New 成人大片specific autism research available.
鈥淲hat often happens is that we take research conducted in other countries, and then apply it here. Autism research needs to be relevant to Autistic people in Aotearoa, their needs and preferences.
鈥淎 lot of funding goes to biological research about autism. But no one had asked Autistic people if this research is important or relevant to them and their lives.
鈥淭here was a clear call for understanding the health, mental health and wellbeing needs of Autistic people, and a specific understanding of the needs of the population in Aotearoa New Zealand.
鈥淭he Autistic community also told us that they did not support cure-related research, or behaviour management research.鈥
Dr Emerson wasn鈥檛 surprised by the key findings.
鈥淭hey echo the known problems with how we currently support and accept Autistic people in our society. There is poor access to mental health supports for Autistic people, and a strong bias towards early intervention. But what about Autistic adults, and young people? There needs to be improved supports available that are accessible and relevant to Autistic people across the lifespan.鈥
The study identifies four broad areas identified for future research:
- Determining the needs of Autistic people
- Design, development and implementation of effective supports and services
- Understanding the perspectives and experiences of Autistic people throughout their lives
- Creating inclusive communities, which focus on improving the structures and environments in society, such as education and workplace settings.
A full public report of the project will be available later this year.
Lisa is establishing the Autism Research Collaborative (ARC) at the 成人大片, with co-investigator Associate Professor Laurie McLay. The ARC will drive for change in autism research in Aotearoa.
The collaborative will support community inclusion in its research through the Autistic Research Partnership,听 a group of autistic people who will influence research strategy, designs and outputs.
